Marc and Wendy met with Dr Fabien Ntagnana, Hematologist to discuss Rwanda's hemophilia population and treatment. Marc works with a non-profit organization - Save One Life (saveonelife.org) that provides support to developing countries for hemophilia patients and NGOs (Non-Government Organizations). Hemophilia is a genetic disorder that affects 1 in 20,000 males. This causes bleeding into the joints leading to joint damage at an early age and eventually will leave them disabled, which in a developing country is devastating. If untreated, many patients will die at an early age.
In Rwanda, a hemophilia program is just getting started by Dr Fabien where they have diagnosed only 20 patients in the country. They believe 5-600 patients currently reside in Rwanda but they do not have the resources to diagnose or treat those patients. Through Save One Life we hope to provide support in education, diagnosis, treatment and genetic counseling.
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